Pennsylvania Advocacy


Lupus Foundation of Pennsylvania
Serving 66.000 Lupus Patients and their Families in
62 of the 67 counties in PA

To our Lupus Constituents:
We are coordinating a local Advocacy campaign and we are asking you to:


Contact your State Senators and Representatives and urge them to keep funding for Lupus Patients through the Lupus Foundation of Pennsylvania in the 2012 -2013 State Budget. At this time Governor Corbett has eliminated (zeroed out) our line item.


In the past, the Lupus Foundation has received State funding, making it possible to provide:
•Professional - Patient and Family Information and Support
◦New Patient Orientation Programs
◦Comprehensive literature & Web and Newsletter Medical Updates
◦Educational Community programs and seminars
◦High School and College Education Presentations
◦Community/Telephone based support groups
◦Information and referral services


We are urging lupus patients, families and friends to write letters and/or make appointments with their respective legislators in their local district and/or Harrisburg state offices. This manner of presentation will allow more individuals to directly convey their message and concern of their personal issues surrounding lupus. Our Legislators are telling us that they are not hearing from Lupus Patients and therefore do not feel the need to support us.


Please, write a letter, schedule an appointment to meet and discuss your lupus issues. Ask for their support in reinstating Lupus in the State Budget, to help continue the improved quality of health and life for Lupus Patients.


A complete listing of Legislator names along with their contact information can be found at http://www.legis.state.pa.us/index.cfm


For your convenience, links to our PA Legislative Letter
and our Program & Services Fact Sheet are below.


Senate Letter 2012
Representative Letter 2012
Outline of LFP Programs and Services

For additional information contact the
Lupus Foundation of Pennsylvania at 1-800-800-5776 or info@lupuspa.org