Resources
Adult Basic
Low cost health insurance for uninsured Pennsylvanians
between the ages of 19 and 64 administered by the
Pennsylvania Insurance Department
1-800-GO-BASIC
www.compass.state.pa.us
Advocacy
It is vital to keep your government officials on national, state and local levels aware of issues related to lupus. Call, write or e-mail them.
United States Senate: www.senate.gov
U.S. House of Representatives: www.house.gov
Pennsylvania Legislature: www.legis.state.pa.us
American Academy of Dermatology
Provides patients & health care professionals with up-to-date information, treatment & management of skin diseases. There is access to find a local dermatologist.
866-503-SKIN (7546)
www.aad.org
American Autoimmune Related Diseases Association
Patient information on more than 60 autoimmune
related diseases. Founded in 1991.
1-800-598-4668
www.aarda.org
American College of Rheumatology
Provides geographic membership directory to find a
rheumatologist, patient information on general topics and disease specific information, and links to clinical trials.
1-404-633-3777
www.rheumatology.org
Brave Kids
Help for children with chronic, life-threatening
illnesses and disabilities
www.bravekids.org
Center for Disability Law and Policy
An advocay program for people with disabilities provided
at no cost.
1-888-745-2357
www.equalemployment.org
DisabilityInfo.gov
Provides quick and easy access to comprehensive information about disability programs, services, laws and benefits from the federal government.
www.disabilityinfo.gov
Fibromyalgia Network
Provides educational material on Fibromyalgia Syndrome and Chronic Fatigue Syndrome.
1-800-853-2929
www.fmnetnews.com
Headcovers Unlimited
A complete line of wigs, hats, turbans,
and caps created for women and men with hair loss.
1-800-264-4287
www.headcovers.com
Health Myths
A website offering up-to-date information about internet myths and presents reliable sources to refute them.
www.urbanlegends.about.com
Insurance Information
The PA Insurance Department is a resource for consumers & the insurance marketplace to gather
information about various types of insurance, seek data
about an insurance company, a request or complaint that can be filed with the department. Many valuable
brochures available without charge.
1-877-881-6388
www.insurance.state.pa.us
Job Accommodation Network
A consulting service that provides information about job
accommodations, the Americans with Disabilities Act and the employment of people with disabilities.
1-800-526-7234
www.jan.wvu.edu
Laboratory Tests
A patient-centered on-line resource for clinical
laboratory testing from laboratory professionals
www.labtestsonline.org
Lupus Foundation of Pennsylvania
The mission of this state foundation is to promote awareness, education, service and research for those affected by lupus. Branch locations are Erie, Harrisburg, Pittsburgh, and Pocono/NE.
1-800-800-5776
www.lupuspa.org
Lupus Research Institute National Coalition
An advocacy network of state and local lupus organizations united to promote awareness of the seriousness of lupus and the need for increased research and research funding.
1-212-685-4118
www.lupusresearchinstitute.org
Lupus Together for Clinical Trials Today
Information about the clinical trials process and available clinical trials nationwide.
1-877-958-7425
www.lupustrials.org
Medic Alert
Order information for emblems that provide up-to-date
medical, physician and medication information
1-888-633-4298
www.medicalert.org
Medline Plus
Provides health information on an extensive list of
conditions, diseases and wellness. Also provides drug
information directories, current health news and information on clinical trials.
www.medlineplus.gov
National Center for Complementary and Alternative Medicine
The center supports rigorous research on complementary and alternative medicine to train researchers and disseminate information to the public and professionals on which CAM modality works.
1-888-644-6226
www.nccam.nih.gov
National Kidney Foundation
Those with kidney complications of lupus may find support and information from this agency.
1-800-622-9010
www.kidney.org
National Women’s Health Information Center
Provides a gateway to a vast array of federal and other
women’s health information.
1-800-994-9662
www.4women.gov
NIAMS
National Institute of Arthritis and Musculoskeletal and Skin Diseases offers information on a variety of health topics, publications, and studies with patients, patient research registries, and outreach programs.
877-22-NIAMS (226-4267)
www.niams.nih.gov
OVR
The Pennsylvania Office of Vocational Rehabilitation, a state agency that helps persons with disabilities help themselves to prepare for, start, and maintain a career. There are sixteen offices located throughout PA.
1-800-442-6371
www.dli.state.pa.us
PA Department of Health
Information on an extensive list of health topics and resources for you and your family.
1-877-724-3258
www.health.state.pa.us
Parnership for Prescription Assistance
Helps qualifying patients who lack prescription coverage get the medicines they need through the public or private program that is right for them. It offers a single point of access to more than 475 patient assistance programs.
1-888-477-2669
www.pparx.org
Pennsylvania Commission for Women
Serves as a strong advocate for women’s rights and works to ensure that women and girls have equal opportunities in all aspects of life for treatment.
1-888-615-7477
www.pcw.state.pa.us
Pennsylvania Health Law Project
A statewide, non-profit, public interest law firm that supports & represents low-income families, older adults, & persons with disabilities having problems with accessing health care and/or quality of health services.
1-800-274-3258
www.phlp.org
Physicians’ Disability Resources
Resource for social security disability application, updates, re-evaluation information & free resources.
410-431-5279
www.disabilityfacts.com
Raynaud’s Foundation
Dedicated to the promotion of education and research on Raynaud’s Phenomenon and related diseases, both
autoimmune and non-autoimmune.
1-773-622-9220
www.raynauds.org
Rx Council
A nonprofit, tax-exempt 501(c)(3) organization which provides emergency prescription assistance through direct services to individuals on a low or fixed income.
412-471-9570
www.rxcouncil.org
Scleroderma Foundation
The national organization for people with Scleroderma,
their families and friends. It helps patients and their families cope through mutual support programs, peer counseling, physician referrals, & education information.
1-978-463-5843
www.scleroderma.org
Sjogren’s Syndrome Foundation
Information, education, advocacy and support for those
with Sjogren’s Syndrome.
1-800-475-6473
www.sjogrens.org
Social Security Disability Assistance
Patient and physician must initiate procedure, but if help is needed to establish eligibility with lupus or rulings for application or appeal, call your local branch and a letter of support can be written upon request.
www.disabilityfacts.com
The Special Kids Network
A quick way to find many resources in your
community to help meet the health care needs of
children with chronic or disabling health conditions.
1-800-986-4550
www.helpinpa.state.pa.us
Supplements
Look up an herb, vitamin or other supplement information and evaluate claims of treatment success according to available scientific evidence.
www.mayoclinic.com
The Well Spouse Foundation
Well Spouse is a national, non-profit membership
organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled.
1-800-838-0879
www.wellspouse.org
Workplace Discrimination
If you believe that you have been discriminated against
because of lupus or any disability, contact the Equal
Opportunity Commission at 1-800-669-4000. You can
also contact the Center for Disability Law and Policy in
Pittsburgh
412-391-5225 or
Philadelphia 215-238-8079
www.dlp-pa.org
